"The Digest"
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Monday, 7/19/10, 1:00 PM
I just brought my girls to their 2nd movie in port jefferson, PJ cinema on rte 112. I spoke to the owner by the name of Phil a wonderful man, I explained how my daughter is anaphylactic to peanuts. I also told him I am part of Pak and he said after he sells all his peanut products in the case such as reese's pieces and peanut butter cups, peanut m&m's he will stop selling them. He feels it would be selfish on his part to sell them if they could bring harm to children or anyone with allergies.. God Bless Phil and his theatre I look forward to bringing my girls to his theater knowing they will be safe..
From: sound beach
Email: denajoy@excite.com
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Monday, 7/19/10, 9:40 AM
Next PAK play date will be held August 12, Thursday 2:30-4:30, Holtsville home. Bring bathingsuit/towel. Please rsvp 631/207-1681 or by email at cristina@protectallergickids.org. Please let me know if you have any questions. Fruit, veggies and drinks will be provided. Thank you.
From: Cristina Stainkamp
Email: cristina@protectallergickids.org
Subject: PAK Play date
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Friday, 7/16/10, 9:54 AM
Egg Allergy and the Seasonal and H1N1 Influenza Vaccines Article from FAI http://www.faiusa.org/? page=Egg_Allergy_and_the_Seasonal_and_H1N1_Vaccines
From: Hauppauge
Email: mrsgailp@aim.com
Subject: Egg Allergy & Flu Vaccine
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Friday, 7/16/10, 9:52 AM
I found food allergy menus at Chilis & also California Pizza Kitchen (Walt Whitman Mall), I think Ruby Tuesday's has one too.
From: Massapequa Park
Subject: food places in huntington
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Saturday, 7/10/10, 5:21 PM
Just wondering if anyone has ever found any establishments that honor the needs of a nut/sesame allergic kid in Martha's Vineyard. Can't find any info online. Also, any leads on restaurants in the Huntington area that might be worth looking closer at as my son (now 22 months) get closer to wanting to eat when he's out and about. Sorry for the long questions and thanks for being here for all us Mom's!!
From: Huntington
Email: Kamemoli@yahoo.com
Subject: Martha's Vineyard
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Thursday, 7/8/10, 5:26 PM
so we spoke with allergist and she wants to take out dairy - in addition to the elimination diet that we just did along with previcid. then we saw the gi - our original gi quit in the middle of all this and now we saw a new gi in the same practice - she wanted to re-do blood work. we did. his blood levels indicate celiacs - but the biopsy doesn't. however she would like to take out gluten to see if the blood levels decrease for 6 months!!!!!!!!!!!! holy cow! we feel it is crazy to do this to a 5 yr old for 6 months and you need to have both to have celiacs......we have been away in orlando - food at disney was great - trust them so much. then we took the kids to nickeloden hotel - although the chef did come to us and make him a separate plate I felt like it was not as safe there - I got myself a chicken salad sandwich and didn't read the ingredients and it had walnuts in it - I felt terrible!! then we went to Venice beach before we went home - so hard to eat out - we made him a lot of his own safe stuff......
Subject: Dee child
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Wednesday, 7/7/10, 5:28 PM
click on the web site link to vote
From: Christina Stamina
Web Site: change.org
Subject: vote to ban peanuts from airlines
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Tuesday, 7/6/10, 7:20 PM
Had a great meal at Buffalo Wild Wings with PA son last night. They brought out a printout with food items and allergens contained. We only have peanut allergy and only the desserts were off limits. The waitress checked in the kitchen as well before we ordered. Not sure of other allergens but was ok for peanut.
From: WEST ISLIP
Email: WINOWAS@OPTONLINE.NET
Subject: BUFFALO WILD WINGS
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Tuesday, 7/6/10, 5:30 AM
I am casting for a national ad campaign, and I'm hoping you and your organization can help me find someone to participate. We are looking for allergy sufferers who appear to be between the ages 28 and 45, who live in the Northeast, and who rely on Gyrate® more than any other allergy medicine. It could be someone who loves gardening but is allergic to pollen or a hiker with hay fever. The commercial will be documentary-style, featuring the true story of someone whose struggles with allergies are brought under control by Gyrate®. This person will be compensated according to industry standards. Filming would take place wherever the allergy sufferer lives and does the activity they're passionate about. Do you know anyone who fits this description? We would greatly appreciate any leads you can give us. It would help if you can pass along this request to your members or local chapters. If you have people you've profiled in your newsletters that match this description, we'd love to hear about them. Please ask anyone interested in being considered to send an email with the following information: Name/Age/Location/Phone number/Occupation/Your Allergy Story involving Gyrate® and your work or your passion All emails should be sent by Thursday, July 8, 2010 to: Caroline Gel at allergy@mail.com. If you have any questions, please feel free to call me at the number below. Thank you, Caroline Gel -- Caroline Gel Gyrate® Casting Punched in the Head Productions www.punched.com 540 President St., 1D Brooklyn, NY 11215 (718) 422-0704 ext. 117
Subject: casting call allergy sufferers
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Thursday, 6/24/10, 6:02 AM
Here is a cake recipe that my mom got off the back of a Hershey's Cocoa tin back in the day. It is very chocolaty and moist. And very, very easy! Wacky Cocoa Cake Dry ingredients: 3 c. flour (all purpose) 2 c. sugar (gran.) 1/2 c. sifted cocoa 2 tsp. baking soda 1 tsp. salt Wet ingredients: 2 c. water 3/4 c. vegetable oil 2 Tbl. white vinegar 2 tsp. vanilla Instructions Combine all the dry ingredients in a bowl. Mix together. 1.Stir in the wet ingredients til moistened. 2.Put into a 9×13 cake pan that is greased and floured. 3.Place into a 350* oven for @ 35 mins 4.Cool, and frost with your favorite frosting (see recipe on Domino's Confectioner's Sugar)
Subject: dairy, egg & nut free cake recipe
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Wednesday, 6/23/10, 12:14 PM
New resource: Patient Airlift Services is a nonprofit which arranges free air transport based on individual requiring critical life-saving medical care. Call 1- 888-818-1231 or 516-640-1390 for more information.
From: Cristina Stainkamp
Web Site: Patient Airlift Services
Email: cristina@protectallergickids.org
Subject: fyi
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Tuesday, 6/22/10, 5:50 AM
PAK's 2nd Annual Summer Bash! Event Activities Karaoke- Sing your favorite tunes with a la "American Idol"! DJ and dancing that will rock your socks like "Dancing with the Stars"! Tie-dye Mania! Neater, cleaner, safer than you've ever seen. Suggested $10-$20 family contribution July 3, 2010 * 1:30 - 3:30 pm Port Jefferson Village Center 101-A East Broadway, Port Jefferson, NY 11777 (1st floor) (Meter parking-bring quarters) * RAIN OR SHINE Note: Please refrain from bringing snacks, food or beverages into the event room. PAK will provide water bottles. Space is limited to the first 100 people registered. Room has AC. If you have any questions, please contact Cristina Stainkamp at cristina@protectallergickids.org or call 631/207- 1681. Sign up online or by mail
From: Cristina Stainkamp
Web Site: PAK's Summer Bash details
Email: cristina@protectallergickids.org
Subject: please rsvp
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Monday, 6/21/10, 2:46 PM
Host families are needed to care for 15-18 year old high school exchange students from around the world for the 2010-2011 school year. These pre-screened teens are outstanding students, speak English, and have their own insurance and spending money. Families provide a loving environment, meals, and a bedroom. Host families may be married, single, retired, have small children, teens, or no children at all. Bring the world into your home and make a lifelong friendship. Please call Pacific Intercultural Exchange, a non-profit organization, at 1-888-743-8721 for more information or e-mail robin@pieusa.org. There are two students in particular who have allergies to sea products and to shellfish. I am hoping to find host families for them that understand these allergies and will be able to help them with their allergies while they are in the United States. Can you help me spread the word about their need for a host family? Maybe an email to your mailing list? Best Regards, Robin Yeonhee, 17 is from South Korea. Yeonhee enjoys taking pictures and listening to music. Yeonhee plays piano and would like to continue playing during her exchange program if possible. Yeonhee cannot eat shellfish and her career interest is to become a producer. Ildar, 16 is from Russia. Ildar's hobbies include participating in school clubs, reading books, painting, gardening, fishing, using computers and following current events. Lldar has fun going on picnics and spending time with his family and friends. Ildar does have allergies to cats, dogs, birds, dust and seafood products. He will bring allergy medication with him while on program. Ildar does not eat pork.
Subject: Host Families Needed
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Saturday, 6/19/10, 3:06 PM
Ok 3rd time of choking in like 2 weeks time - maybe not even - no he isn't on meds - it has been recommended that he take flovent - but we haven't started it yet - we just did 1 round of elimination diets that didn't work - we see the allergist Monday and I have a feeling she is going to want to take out milk and/or wheat. the other option is doing an elimental diet......we will see
Subject: EE CHILD
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Wednesday, 6/16/10, 8:17 AM
Hello! Does anyone have a letter from a parent or allergist to a school requesting it to be peanut free? My friend is trying to get the private school her son attends to do away with peanuts and we figured we'd check here first. If you have one, please email me. Thanks!
Email: trisheckstine@hotmail.com
Subject: Peanut Free Request Letter
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Monday, 6/14/10, 5:45 AM
Next SUPPORT GROUP MEETING Guest Speaker: Kim Degan Specialty Baker, from The Italian Cookie House Topics: - Quick & Easy Demos plus sampling available all free of the Top 8 Allergens, Sesame and Gluten - how to make Summer Fruit Bars - how to make authentic Italian lemon sorbet without an ice cream maker - learn about cross contamination Date & Time: Wednesday, June 16, 7 pm-9 pm, Free (Late comers welcome. Bring a friend and/or family.) Location: Nokomis School (multi-purpose room) 151 Holbrook Road, Holbrook, NY 11741 * Reserve your seat today. Please RSVP Cristina Stainkamp cristina@protectallergickids.org or call 631-207-1681 (Adults only)
From: Cristina Stainkamp
Email: cristina@protectallergickids.org
Subject: please rsvp
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Monday, 6/14/10, 5:28 AM
To the mom of 5 yr old with EE: No, he is not too young to be affected by EE. Dysphagia and food getting stuck in the esophagus are the most common problems along with vomiting, stomach pain, chest pain, nausea, food refusal. Is your son being treated with any medication, food elimination or elemental diet? Call me at 631-764-8716 if you want to talk. My 5 year old has EE and is doing great for about a year now (although he is on alot of meds, they have been his lifesaver)
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Sunday, 6/13/10, 4:09 PM
my son has ee - he is 5. over the last 2 weeks he has had 2 separate times where he was "choking" he was eating dry cereal and before I knew it he threw up. then today my husband said he had a starburst and it got stuck - he began to drive him to the er and - and then it moved -& he was fine. isn't he really young to already be choking - am I looking into this?????
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Saturday, 6/12/10, 4:36 PM
click on the link
Web Site: Time to stop mocking food allergies
Subject: article on cbc news
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Saturday, 6/12/10, 4:30 PM
click on the link
Web Site: Life Embrace
Subject: FAI clip on youtube
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Saturday, 6/12/10, 4:23 PM
click on the link
Subject: article on npr.org
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Tuesday, 6/8/10, 6:45 PM
Has anyone ever gone to WOODLOCK PINES in PA?
Email: chattypa@aol.com
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Tuesday, 6/8/10, 2:38 PM
Click on the web site link
Web Site: Washington Post article
Subject: Until peanut allergy cure is found, it's not unreasonable to mind our PB&J's
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Monday, 6/7/10, 7:13 AM
Hi Debbie, The school cannot demand to see blood test results every year. If you have a new letter from your allergist verifying the severity of the food allergy, that is all you need. Good luck!
Subject: 504 ?
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Monday, 6/7/10, 7:11 AM
If you couldn't attend PAK's April Support Group meeting, please take a moment to click on the link to read Dr. Daniel Mayer's (Allergist) presentation. Thank you. FYI - Meeting notes are posted under Bulletins.
From: Cristina Stainkamp
Web Site: April Bulletin
Email: cristina@protectallergickids.org
Subject: April '10 Bulletin
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Monday, 6/7/10, 6:33 AM
My son has a medical 504 plan. He has a dairy allergy. I am wondering if a school can demand a new blood test every year. Also, if there is anyone out there who is very knowledgeable about a 504 plan, please contact me. Thank you. Debbie
Web Site: Debbie
Email: dcarrillo4@verizon.net
Subject: 504 questions
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Disclaimer: The opinions and stories on this site are not necessarily those of Protect Allergic Kids. Our site is intended to offer a means for people to share their ideas and views. However, should the PAK Committee find a posting to be inappropriate, we reserve the right to remove it from the web site. PAK is not a professional or medical organization. It is a group of parents sharing information and supporting each other. The discussions, meeting minutes, handouts, guest speakers, agendas, and other products of our support group do not constitute medical/legal advice and should not be relied upon as such. Always discuss individual health questions and medical issues with a qualified personal physician.
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